4 campaigns raising money for rare disease, $576,951 raised so far.
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No promise of a cure
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Most recent
Most raised
Closest to goal
By name
Lafora
We are raising money for developing an ASO for Lafora disease
$1,590
of $300,000
1%
STXBP1
$352
of $1,650,000
0%
NEK1 fALS
Help Develop a Treatment for NEK1-Associated ALS For families facing ALS, a genetic diagnosis can offer an explanation—but it also raises an urgent question: Ca
$341,009
of $800,000
43%
DNM1
Campaign to raise funds to develop a treatment for DNM1-related encephalopathy, a very rare genetic disorder that causes severe seizures and developmental chall
$234,000
of $850,000
28%